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  • Misty
    July 02, 2010 - 13:35

    Keeping you in prayer Mr. Lane... Behind you 100%... God Bless you on your journey.
    Hugssss, Misty

  • CAROLYN
    July 02, 2010 - 13:35

    GO FOR IT MARK...THERE ARE HUNDREDS OF THOUSANDS OF US BEHIND YOU HERE IN THE US!!!!!

  • Mike
    July 02, 2010 - 13:35

    Good luck Mike. You have my support. The neurologists are exercising and abusing their influence over more than just their own area of expertise. They have always owned MS, even though neurology could never explain where it came from, and now CCSVI is a paradigm shift that threatens them. I won't go all conspiracy crazy, but it's hard not to when the research funding and big Pharma revenues at risk are in the Billions (Big 'B').

    Neurologists are like electricians trying to handle a plumbing (vascular) problem. A flooded basement will cause a lot of electrical damage but the problem is NOT electrical, and in this case CCSVI is NOT a neurological problem so neurologists should NOT be asked to even comment. CCSVI is not yet proven thru clinical trials to be the single cause of MS, but it is undeniably a major factor and should be treated.

    Mike: if denied care for CCSVI, your doctor is violating his DUTY OF CARE.
    And since anyone who does not have a diagnosis of MS can get this treatment, you are being DISCRIMINATED against pure and simple. (Ref: Sec 15, Charter of Rights and Freedoms)

  • Jacqueline
    July 02, 2010 - 13:34

    Good Luck Mr. Lane...Will be praying for you, along with all the others that are fighting for our rights in this beautiful country we call home. Thank you for helping pave the way, hopefully opening the floodgates for all us MS'ers and fighting for many of us that can't..
    God Bless

  • Curtis
    July 02, 2010 - 13:34

    I read the news article regarding Dr. Zamboni's procedure and based upon his findings it certainly sounded like a promising procedure. Wishing Mr. Lane all the best!

  • Bonnie
    July 02, 2010 - 13:34

    It is appalling that Mike can get treatment here at home,and is being denied.Thank God he has the strength to fight for him and his family. Maybe now the government will let all residents avail of medical services available,instead of picking and choosing.
    I know you are not looking to become a hero Mike and I wish you nothing but success.

  • anne
    July 02, 2010 - 13:31

    My personal thanks to Mark Lane for taking on this battle. He is fighting for the whole MS community, and for social justice.

  • Tim
    July 02, 2010 - 13:30

    Way to go Mark, I am sure that if required we can raise all the money needed to help you in your fight. I lost my wife to MS in Dec. of 2008. She had suffered with primary progressive for about 17 years. Now we are fighting to help her niece who has relapsing remitting but is fastly progressing. She has had the testing done and is possitive and is now on two waiting lists to have the procedure done in Europe because our Progressive country cannot look after it's own people. I think that the Neuro's should also be ashamed of themselves for hiding thhis since the sixties never mind since it was first thought of a century ago. GOD BLESS and all the best.

  • Marcia
    July 02, 2010 - 13:29

    I am rooting for you.....go Mark!!!!!!

  • anne
    July 02, 2010 - 13:29

    My heart-felt thanks go to Mark Lane; I am so glad he decided to stick it out in Canada, rather than travelling to India for the procedure.
    Mark is fighting this battle for all of us who have CCSVI, for the entire MS community, and for human justice!

  • anita
    July 02, 2010 - 13:28

    I have primary progressive MS so there is no medication and no research for that kind. my only hope is CCSVI treatment.
    My sister also had primary progressive and she suffered and died in pain. so Iam fighting for that treatment.I wa on Parlenment Hill Ottawa on the 5th of May. I sent a letter to the minister of Health Honorable Leona Aglukkag. Health is a federal law.

  • Alyne
    July 02, 2010 - 13:27

    Nous savons tous quel est le problème. Des brebis gouvernées par les compagnies pharmaceutiques. Je suis confiante qu'à quelque part certains médecins vont lutter pour nous. J'ai honte d'être canadienne. D'ici là je vais passer un examen et par l suite attendre pour une confirmation du traitement en Écosse. Bonne Chance

  • Maxine
    July 02, 2010 - 13:26

    Mark I hope you are successful in your quest for treatment for CCSVI! It is causing UNDUE STRESS for people with MS!
    We are made to fight for vascular treatment we should have access to! MSI which is controlled by our provincial gov't will not allow us the treatment we need! We should be taking them to court!

  • Lori
    July 02, 2010 - 13:26

    God Speed! I wish Mr. Lane nothing but success and health in his quest. This is something that Might work and God knows we have enough MS in this province that even a might is better than nothing at all.

    I hope there will be a letter writing campaign and petitions that we can all get on board with. MS is a horrible horrible disease that strickens our brightest and our best young people, robs them of their coordination, muscle control, eyesight, speech and so much more as it progresses.

    Good Luck Mark! YOU are a hero in my eyes.

  • Megan
    July 02, 2010 - 13:26

    It is discrimination, Anyone thinking class-action law suite yet?
    Good luck Mark!

  • Lee
    July 02, 2010 - 13:25

    God Bless you Mark.
    We are behind you every step of the way.
    11 yrs ago I broke away from the MS Society in Canada. I got my own charter for a brand new MS Association .The FIRST of its kind in the world they say. and we have a charity stamp to give receipts for money donated. Our money raised goes directly to the people with MS for meds they can't afford. We cover only the Eastern Townships though that is our assigned area.
    Right now we have one member that we are raising funds to send her for the CCSVI .. and Mike you are going to help pave the way for us .
    Our association can be found here registered for 11 yrs with the Gov of Canada.e-mail msfree333@hotmail.com
    http://www.cra-arc.gc.ca/ebci/haip/srch/basicsearchresult-eng.action?s=+&k=La+Scl%E9rose+en+Plaques+Branche+Anglophone+2000&b=true&p=1&f=25#pageControl
    We are in Quebec so it is in french. La Sclerose en Plaques Branche Anglophone 2000. we go as MS Branch 2000
    Hats off to you Mike ...you will do it know and Count us as Enlisted in Battle if needed.
    a Fellow MS'er
    Lee Aulis president and founder

    ((((Hugs)))))

  • Maltais
    July 02, 2010 - 13:25

    Je comprends très bien la situation de Mr Lane et je trouve fustrant de voir que les collèges de medecins ne soient pas plus sensibilisés à notre cause. Je dois passer une examen à Westmount le 25 mai et peut être par la suite subir l'opération en Pologne.

    Good luck Mr Lane.

  • Felicia
    July 02, 2010 - 13:24

    May GOD give you strenth and I pray he will open the door for you and the rest of us! I too am LOOKING INTO WHERE TO GO TO GET THIS TREATMENT, I LIVE JUST UP THE ROAD FROM YOU IN BROWARD COUNTY, WE NEED HELP NOW! THANK YOU FOR PUSHING FOWARD.

  • Mike
    July 02, 2010 - 13:23

    SALLI FROM NL: you are referring to the Buffalo study by Zivadinov. Dr. Z used only Doppler with inexperienced techs compared to Zamboni who did actual Venograms--a huge difference. An extra 10% of Buffalo's scores were 'probable' (still, only 65%) and, most important, a small portion of the 'normal' population had CCSVI, too! This suggests CCSVI is NOT the sole cause of MS, but it is a major factor. It takes about 30 years, on average, for MS symptoms to appear, so are the 'normals' with CCSVI but not MS, are they just 'pre-MS'? Are they missing some other environmental factor (like Vitamin D deficiency) to trigger MS? Buffalo study proves CCSVI has very strong correlation to MS.

    Nobody has ever died from Liberation treatment: the Stanford patient who died from brain hemorrhage was not caused by this procedure (as per her own family who also lost the Mother the same way). No connection. Another patient had a stent get loose and result in open-heart surgery. Terrible, but stents should NOT be used anyway and thankfully patient survived. How many angioplasties are done in your nearby hospital EVERY SINGLE DAY?

    Salli - Take care of yourself. Neurologists are only experts in neurology. They have no knowledge of CCSVI except that it may take away their research dollars and payments from the big Pharma companies when they choose to give you their drugs. Keep your eyes and mind open (and your jugular veins, too!)

  • jerry
    July 02, 2010 - 13:23

    hope the best for you mr.lane my son has ms to it struck him when he was thirty he is 37 now can't walk or do anything for himself but he is on the internet every day emailing the mha both fed and prov doing everything he can to get this new treatment done we were in town this wensday an was told that this could be done right here in NL but there hands are tied . so if you need our support were there.

  • Alyne
    July 02, 2010 - 13:23

    Somewhere out there perhaps a physician or two will join all of us in this battle because they know what's really behind this stalling. Big money from PHARMA compagnies who are at stake.
    Myself I am getting the test this month and will go to Europe. I will need to remortgage my house. I will never recommend people to give money to the MS society.

  • Marlene
    July 02, 2010 - 13:23

    Good for you!! Give them hell if they try to shut you down. I totally agree that if you take MS out of the equation there is no possible reason why they should not clear your blocked veins. I have suffered with this for 20 years now and it is about time I got my life back. Thank you for pursuing this to a higher court.

  • db
    July 02, 2010 - 13:23

    Mark,,, what a magnificent & brave thing to do!~ With all the overwhelming CCSVI news since Nov 09, I never thought of this -- a rightful challenge put to the HRC by you and yr lawyers. And doesnt it make sense. Plse post updates on FB's CCSVI Toronto page. Good luck! :]

  • Jamie
    July 02, 2010 - 13:22

    I will also be going to the same Clinic as Mark to look for blockages in my veins. I was diagnosed with MS in 1994 and have been doing well. It's great to have a person such as Mark standing up for us... Good luck to you Mark and hope to see you at False Creek...

    JC

  • Heather
    July 02, 2010 - 13:22

    Good Luck Mr. Lane.

  • Penny
    July 02, 2010 - 13:22

    Mark, I wish you all the best with your health and treatment of MS. I applaud you for what you are doing for yourself and everyone who suffers from MS. If you get the diagnosis this new treatment can combat, I sincerely hope that you get it in Newfoundland. It would be a shame to have to go to extreme lengths out of province to do so. Regardless of what the outcome is I know that you are prepared to fight whichever battle comes your way. Good luck and my prayers are with you.

  • Anon
    July 02, 2010 - 13:22

    Sorry Mark, Pharmaceutical companies want you to keep buying their pills and medications that jeep you alive but dont treat you. If you get cured even a little bit they lose money and they will lobby the government and throw all the money they have at them albeit very quietly to make sure that getting this treatment is as difficult as possible for you or anyone else to get.

    Cure for cancer? even if they had one they wouldn't dare let anyone have it.

  • Rusty
    July 02, 2010 - 13:20

    Good luck Mark. Hope it works out for you.

  • deborah
    July 02, 2010 - 13:19

    Mark, I commend you for taking up the cause for us MS sufferers. I was diagnosed 5 years ago. I had to retire as a provincial public servant and life really changed. The medications alone are staggering.

    We need someone to help bring this procedure to the province NOW. Not when they do several studies to prove it works.

    Don't people realize that MS is a degenerative disease and with relapsing-remitting MS for every relapse we lose a percentage of our body function. With this happening over time the disability increases. We can not and should not wait!! I am behind you 100% and I call on all MS sufferers in the province to speak up on this subject.

    Deborah Halliday

  • David
    July 02, 2010 - 13:19

    Great job Mark
    This is a human rights issue and it is sickening to think that we are being subjected to this cruel torment by the very institution we put there to protect us form such insanity.It is hard to believe this is happening in Canada,the very country that goes to bat for any and every international human rights abuse ,but can not see it in there own back yard.SHAME on the whole lot of Doctors and politicians who are road blocking this day procedure in Canada

  • Joanne
    July 02, 2010 - 13:18

    Go Mark!!!!! If I could afford it I would be right behind you. As soon as I watched the W5 program I immediately emailed my MS Nurse to say I was willing to take part in any research related to this treatment. I was diagnosed with MS in 1998. I just turned 40 and am doing quite well at the moment but I've had my share of relapses and illness over the past eleven years. I am so hoping something positive will come of your trip. It may change the future of many people with MS. Good Luck!!!

  • Deborah
    July 02, 2010 - 13:18

    There are on line petitions as well as they ask that people send emails to the Health Minister, your Senator, and MLA's telling them how you feel on this subject.
    The addresses are all very easy to access on line by doing a google search or thru face book there are many support groups of CCSVI join one or some and they will be only too happy to pass along when to contact.
    Good of you Mark to do this on behalf of so many that suffer with MS and for the people in the future that will be diagnosed!! You are a Hero in my eyes too!

  • Gary
    July 02, 2010 - 13:17

    Good luck Mark, when you get back home let me know and I will help you battle, my wife has MS and CCSVI my be her only hope

  • Renee
    July 02, 2010 - 13:17

    Mark, you are truly an inspiration. You have always been so determined and your convictions strong. The people of Newfoundland and Labrador are extremely fortunate to have such a compassionate advocate and I'm very lucky to be able to call you my friend. Good Luck, my thoughts and prayers are with. Fight the good fight Mark and know that you have a tremendous amount of support from family, friends and everyone who is afflicted with MS.

  • scotty
    July 02, 2010 - 13:16

    good luck mark !we all need a hero like you to stand up and not take no for a answer.best of luck .i hope this will open the floodgates for m.s patients.i am sure we all know some one who is going through this.take care!

  • Bridget
    July 02, 2010 - 13:16

    My thoughts and prayers are with you.We need a person like you to be the spokes person for so many with this debillitating disease. You are not alone in your fight,we are all right there with you,Mark.I myself have multiple sclerosis.I struggle each day just to care for myself.I have two little grandsons that I would like to be able to enjoy.I feel most days that I am just on the outside looking in at this thing we call life. We are being denied a treatment for a blockage.What would happen to cardiac patients if they were denied treatment for their blockages.It's our right to be treated.A doctor takes a hypocritic oath to do no harm.Well, without this treatment we are being harmed in a devastating manner.Good Luck,to you ,my friend.Iamwith you in spirit.

  • Lisa
    July 02, 2010 - 13:15

    GODSPEED MARK! I shall be tracking your progress and if and when you come to battle, count me in to raise support and raise my voice...locally, provincially, on Parliament Hill!!

    I have written my MP and the Minister of Health, I think now I shall contact a Human Rights Lawyer!

    Lisa

  • Tami
    July 02, 2010 - 13:13

    If ever you doubted who was in your corner, just take a look in the rearview mirror and see who has your back!! Godspeed!

  • steve
    July 02, 2010 - 13:12

    Sick em buddy..I was liberated january 29th and believe you all have the basic human and constitutional right to Liberation.

  • Irene
    July 02, 2010 - 13:12

    Keep the Faith, there is hope on the horizon. Check into a Dr. Sandy MacDonald in Barrie, On. He is a Cardio-Vascular Surgeon that supports the Liberation treatment and has done a trial on 6 people . He spoke to Parliament on proceeding with the treatment A.S.A.P., I'm stealing a quote from his speech I a plumber Cardio-Vascular Surgeon should not have to get the O.K. from an electrician Neurologist to clear a drain .
    Makes sense to me .

  • Sandra
    July 02, 2010 - 13:10

    My first symptoms of MS occurred at the age of 25. Forty years later, I am now burdened with restricted mobility. I can't go for walks, play golf, curl, go sightseeing, shopping or anything else that requires walking. What a way to spend my joyful retirement years. The CCSVI treatment would be a godsend for me and for all the other MS sufferers.
    Mark, I am behind you all the way, and it's so wonderful to have someone proactive and doing what he can to achieve this goal. Good luck to you!

  • salli
    July 02, 2010 - 13:09

    I hope you have done all the proper research before you sign yourself up for this life threatening procedure!! Only 55% of MS patients have this condition of the veins and one man has already died during the procedure. I have MS and I would rather have the MS and still be alive that risk my life on a procedure not fully researched and tested.

    I sincerely hope this works for you and wish you all the best!!!

  • deb
    July 02, 2010 - 13:09

    Attn: Comments webmaster - plse post this revised comment. thnx
    Dear Mark,,, what a magnificent and brave thing to do. The controversy and disparity about CCSVI has been so overwhelming since Nov 09. That youre taking this to the HRC just makes sense. Never thought of it. Bravo. All the best to you and yr lawyers who know this is the Right thing to do. Plse keep us posted on FB's CCSVI Toronto page. Bless you! :]

  • Misty
    July 01, 2010 - 20:25

    Keeping you in prayer Mr. Lane... Behind you 100%... God Bless you on your journey.
    Hugssss, Misty

  • CAROLYN
    July 01, 2010 - 20:24

    GO FOR IT MARK...THERE ARE HUNDREDS OF THOUSANDS OF US BEHIND YOU HERE IN THE US!!!!!

  • Mike
    July 01, 2010 - 20:24

    Good luck Mike. You have my support. The neurologists are exercising and abusing their influence over more than just their own area of expertise. They have always owned MS, even though neurology could never explain where it came from, and now CCSVI is a paradigm shift that threatens them. I won't go all conspiracy crazy, but it's hard not to when the research funding and big Pharma revenues at risk are in the Billions (Big 'B').

    Neurologists are like electricians trying to handle a plumbing (vascular) problem. A flooded basement will cause a lot of electrical damage but the problem is NOT electrical, and in this case CCSVI is NOT a neurological problem so neurologists should NOT be asked to even comment. CCSVI is not yet proven thru clinical trials to be the single cause of MS, but it is undeniably a major factor and should be treated.

    Mike: if denied care for CCSVI, your doctor is violating his DUTY OF CARE.
    And since anyone who does not have a diagnosis of MS can get this treatment, you are being DISCRIMINATED against pure and simple. (Ref: Sec 15, Charter of Rights and Freedoms)

  • Jacqueline
    July 01, 2010 - 20:23

    Good Luck Mr. Lane...Will be praying for you, along with all the others that are fighting for our rights in this beautiful country we call home. Thank you for helping pave the way, hopefully opening the floodgates for all us MS'ers and fighting for many of us that can't..
    God Bless

  • Curtis
    July 01, 2010 - 20:23

    I read the news article regarding Dr. Zamboni's procedure and based upon his findings it certainly sounded like a promising procedure. Wishing Mr. Lane all the best!

  • Bonnie
    July 01, 2010 - 20:23

    It is appalling that Mike can get treatment here at home,and is being denied.Thank God he has the strength to fight for him and his family. Maybe now the government will let all residents avail of medical services available,instead of picking and choosing.
    I know you are not looking to become a hero Mike and I wish you nothing but success.

  • anne
    July 01, 2010 - 20:20

    My personal thanks to Mark Lane for taking on this battle. He is fighting for the whole MS community, and for social justice.

  • Tim
    July 01, 2010 - 20:17

    Way to go Mark, I am sure that if required we can raise all the money needed to help you in your fight. I lost my wife to MS in Dec. of 2008. She had suffered with primary progressive for about 17 years. Now we are fighting to help her niece who has relapsing remitting but is fastly progressing. She has had the testing done and is possitive and is now on two waiting lists to have the procedure done in Europe because our Progressive country cannot look after it's own people. I think that the Neuro's should also be ashamed of themselves for hiding thhis since the sixties never mind since it was first thought of a century ago. GOD BLESS and all the best.

  • Marcia
    July 01, 2010 - 20:16

    I am rooting for you.....go Mark!!!!!!

  • anne
    July 01, 2010 - 20:16

    My heart-felt thanks go to Mark Lane; I am so glad he decided to stick it out in Canada, rather than travelling to India for the procedure.
    Mark is fighting this battle for all of us who have CCSVI, for the entire MS community, and for human justice!

  • anita
    July 01, 2010 - 20:16

    I have primary progressive MS so there is no medication and no research for that kind. my only hope is CCSVI treatment.
    My sister also had primary progressive and she suffered and died in pain. so Iam fighting for that treatment.I wa on Parlenment Hill Ottawa on the 5th of May. I sent a letter to the minister of Health Honorable Leona Aglukkag. Health is a federal law.

  • Alyne
    July 01, 2010 - 20:15

    Nous savons tous quel est le problème. Des brebis gouvernées par les compagnies pharmaceutiques. Je suis confiante qu'à quelque part certains médecins vont lutter pour nous. J'ai honte d'être canadienne. D'ici là je vais passer un examen et par l suite attendre pour une confirmation du traitement en Écosse. Bonne Chance

  • Maxine
    July 01, 2010 - 20:13

    Mark I hope you are successful in your quest for treatment for CCSVI! It is causing UNDUE STRESS for people with MS!
    We are made to fight for vascular treatment we should have access to! MSI which is controlled by our provincial gov't will not allow us the treatment we need! We should be taking them to court!

  • Lori
    July 01, 2010 - 20:13

    God Speed! I wish Mr. Lane nothing but success and health in his quest. This is something that Might work and God knows we have enough MS in this province that even a might is better than nothing at all.

    I hope there will be a letter writing campaign and petitions that we can all get on board with. MS is a horrible horrible disease that strickens our brightest and our best young people, robs them of their coordination, muscle control, eyesight, speech and so much more as it progresses.

    Good Luck Mark! YOU are a hero in my eyes.

  • Megan
    July 01, 2010 - 20:13

    It is discrimination, Anyone thinking class-action law suite yet?
    Good luck Mark!

  • Lee
    July 01, 2010 - 20:12

    God Bless you Mark.
    We are behind you every step of the way.
    11 yrs ago I broke away from the MS Society in Canada. I got my own charter for a brand new MS Association .The FIRST of its kind in the world they say. and we have a charity stamp to give receipts for money donated. Our money raised goes directly to the people with MS for meds they can't afford. We cover only the Eastern Townships though that is our assigned area.
    Right now we have one member that we are raising funds to send her for the CCSVI .. and Mike you are going to help pave the way for us .
    Our association can be found here registered for 11 yrs with the Gov of Canada.e-mail msfree333@hotmail.com
    http://www.cra-arc.gc.ca/ebci/haip/srch/basicsearchresult-eng.action?s=+&k=La+Scl%E9rose+en+Plaques+Branche+Anglophone+2000&b=true&p=1&f=25#pageControl
    We are in Quebec so it is in french. La Sclerose en Plaques Branche Anglophone 2000. we go as MS Branch 2000
    Hats off to you Mike ...you will do it know and Count us as Enlisted in Battle if needed.
    a Fellow MS'er
    Lee Aulis president and founder

    ((((Hugs)))))

  • Maltais
    July 01, 2010 - 20:12

    Je comprends très bien la situation de Mr Lane et je trouve fustrant de voir que les collèges de medecins ne soient pas plus sensibilisés à notre cause. Je dois passer une examen à Westmount le 25 mai et peut être par la suite subir l'opération en Pologne.

    Good luck Mr Lane.

  • Felicia
    July 01, 2010 - 20:09

    May GOD give you strenth and I pray he will open the door for you and the rest of us! I too am LOOKING INTO WHERE TO GO TO GET THIS TREATMENT, I LIVE JUST UP THE ROAD FROM YOU IN BROWARD COUNTY, WE NEED HELP NOW! THANK YOU FOR PUSHING FOWARD.

  • Mike
    July 01, 2010 - 20:09

    SALLI FROM NL: you are referring to the Buffalo study by Zivadinov. Dr. Z used only Doppler with inexperienced techs compared to Zamboni who did actual Venograms--a huge difference. An extra 10% of Buffalo's scores were 'probable' (still, only 65%) and, most important, a small portion of the 'normal' population had CCSVI, too! This suggests CCSVI is NOT the sole cause of MS, but it is a major factor. It takes about 30 years, on average, for MS symptoms to appear, so are the 'normals' with CCSVI but not MS, are they just 'pre-MS'? Are they missing some other environmental factor (like Vitamin D deficiency) to trigger MS? Buffalo study proves CCSVI has very strong correlation to MS.

    Nobody has ever died from Liberation treatment: the Stanford patient who died from brain hemorrhage was not caused by this procedure (as per her own family who also lost the Mother the same way). No connection. Another patient had a stent get loose and result in open-heart surgery. Terrible, but stents should NOT be used anyway and thankfully patient survived. How many angioplasties are done in your nearby hospital EVERY SINGLE DAY?

    Salli - Take care of yourself. Neurologists are only experts in neurology. They have no knowledge of CCSVI except that it may take away their research dollars and payments from the big Pharma companies when they choose to give you their drugs. Keep your eyes and mind open (and your jugular veins, too!)

  • jerry
    July 01, 2010 - 20:09

    hope the best for you mr.lane my son has ms to it struck him when he was thirty he is 37 now can't walk or do anything for himself but he is on the internet every day emailing the mha both fed and prov doing everything he can to get this new treatment done we were in town this wensday an was told that this could be done right here in NL but there hands are tied . so if you need our support were there.

  • Alyne
    July 01, 2010 - 20:09

    Somewhere out there perhaps a physician or two will join all of us in this battle because they know what's really behind this stalling. Big money from PHARMA compagnies who are at stake.
    Myself I am getting the test this month and will go to Europe. I will need to remortgage my house. I will never recommend people to give money to the MS society.

  • Marlene
    July 01, 2010 - 20:08

    Good for you!! Give them hell if they try to shut you down. I totally agree that if you take MS out of the equation there is no possible reason why they should not clear your blocked veins. I have suffered with this for 20 years now and it is about time I got my life back. Thank you for pursuing this to a higher court.

  • db
    July 01, 2010 - 20:07

    Mark,,, what a magnificent & brave thing to do!~ With all the overwhelming CCSVI news since Nov 09, I never thought of this -- a rightful challenge put to the HRC by you and yr lawyers. And doesnt it make sense. Plse post updates on FB's CCSVI Toronto page. Good luck! :]

  • Jamie
    July 01, 2010 - 20:06

    I will also be going to the same Clinic as Mark to look for blockages in my veins. I was diagnosed with MS in 1994 and have been doing well. It's great to have a person such as Mark standing up for us... Good luck to you Mark and hope to see you at False Creek...

    JC

  • Heather
    July 01, 2010 - 20:06

    Good Luck Mr. Lane.

  • Penny
    July 01, 2010 - 20:06

    Mark, I wish you all the best with your health and treatment of MS. I applaud you for what you are doing for yourself and everyone who suffers from MS. If you get the diagnosis this new treatment can combat, I sincerely hope that you get it in Newfoundland. It would be a shame to have to go to extreme lengths out of province to do so. Regardless of what the outcome is I know that you are prepared to fight whichever battle comes your way. Good luck and my prayers are with you.

  • Anon
    July 01, 2010 - 20:06

    Sorry Mark, Pharmaceutical companies want you to keep buying their pills and medications that jeep you alive but dont treat you. If you get cured even a little bit they lose money and they will lobby the government and throw all the money they have at them albeit very quietly to make sure that getting this treatment is as difficult as possible for you or anyone else to get.

    Cure for cancer? even if they had one they wouldn't dare let anyone have it.

  • Rusty
    July 01, 2010 - 20:03

    Good luck Mark. Hope it works out for you.

  • deborah
    July 01, 2010 - 20:01

    Mark, I commend you for taking up the cause for us MS sufferers. I was diagnosed 5 years ago. I had to retire as a provincial public servant and life really changed. The medications alone are staggering.

    We need someone to help bring this procedure to the province NOW. Not when they do several studies to prove it works.

    Don't people realize that MS is a degenerative disease and with relapsing-remitting MS for every relapse we lose a percentage of our body function. With this happening over time the disability increases. We can not and should not wait!! I am behind you 100% and I call on all MS sufferers in the province to speak up on this subject.

    Deborah Halliday

  • David
    July 01, 2010 - 20:00

    Great job Mark
    This is a human rights issue and it is sickening to think that we are being subjected to this cruel torment by the very institution we put there to protect us form such insanity.It is hard to believe this is happening in Canada,the very country that goes to bat for any and every international human rights abuse ,but can not see it in there own back yard.SHAME on the whole lot of Doctors and politicians who are road blocking this day procedure in Canada

  • Joanne
    July 01, 2010 - 20:00

    Go Mark!!!!! If I could afford it I would be right behind you. As soon as I watched the W5 program I immediately emailed my MS Nurse to say I was willing to take part in any research related to this treatment. I was diagnosed with MS in 1998. I just turned 40 and am doing quite well at the moment but I've had my share of relapses and illness over the past eleven years. I am so hoping something positive will come of your trip. It may change the future of many people with MS. Good Luck!!!

  • Deborah
    July 01, 2010 - 19:59

    There are on line petitions as well as they ask that people send emails to the Health Minister, your Senator, and MLA's telling them how you feel on this subject.
    The addresses are all very easy to access on line by doing a google search or thru face book there are many support groups of CCSVI join one or some and they will be only too happy to pass along when to contact.
    Good of you Mark to do this on behalf of so many that suffer with MS and for the people in the future that will be diagnosed!! You are a Hero in my eyes too!

  • Gary
    July 01, 2010 - 19:58

    Good luck Mark, when you get back home let me know and I will help you battle, my wife has MS and CCSVI my be her only hope

  • Renee
    July 01, 2010 - 19:57

    Mark, you are truly an inspiration. You have always been so determined and your convictions strong. The people of Newfoundland and Labrador are extremely fortunate to have such a compassionate advocate and I'm very lucky to be able to call you my friend. Good Luck, my thoughts and prayers are with. Fight the good fight Mark and know that you have a tremendous amount of support from family, friends and everyone who is afflicted with MS.

  • scotty
    July 01, 2010 - 19:56

    good luck mark !we all need a hero like you to stand up and not take no for a answer.best of luck .i hope this will open the floodgates for m.s patients.i am sure we all know some one who is going through this.take care!

  • Bridget
    July 01, 2010 - 19:55

    My thoughts and prayers are with you.We need a person like you to be the spokes person for so many with this debillitating disease. You are not alone in your fight,we are all right there with you,Mark.I myself have multiple sclerosis.I struggle each day just to care for myself.I have two little grandsons that I would like to be able to enjoy.I feel most days that I am just on the outside looking in at this thing we call life. We are being denied a treatment for a blockage.What would happen to cardiac patients if they were denied treatment for their blockages.It's our right to be treated.A doctor takes a hypocritic oath to do no harm.Well, without this treatment we are being harmed in a devastating manner.Good Luck,to you ,my friend.Iamwith you in spirit.

  • Lisa
    July 01, 2010 - 19:55

    GODSPEED MARK! I shall be tracking your progress and if and when you come to battle, count me in to raise support and raise my voice...locally, provincially, on Parliament Hill!!

    I have written my MP and the Minister of Health, I think now I shall contact a Human Rights Lawyer!

    Lisa

  • Tami
    July 01, 2010 - 19:51

    If ever you doubted who was in your corner, just take a look in the rearview mirror and see who has your back!! Godspeed!

  • steve
    July 01, 2010 - 19:49

    Sick em buddy..I was liberated january 29th and believe you all have the basic human and constitutional right to Liberation.

  • Irene
    July 01, 2010 - 19:49

    Keep the Faith, there is hope on the horizon. Check into a Dr. Sandy MacDonald in Barrie, On. He is a Cardio-Vascular Surgeon that supports the Liberation treatment and has done a trial on 6 people . He spoke to Parliament on proceeding with the treatment A.S.A.P., I'm stealing a quote from his speech I a plumber Cardio-Vascular Surgeon should not have to get the O.K. from an electrician Neurologist to clear a drain .
    Makes sense to me .

  • Sandra
    July 01, 2010 - 19:46

    My first symptoms of MS occurred at the age of 25. Forty years later, I am now burdened with restricted mobility. I can't go for walks, play golf, curl, go sightseeing, shopping or anything else that requires walking. What a way to spend my joyful retirement years. The CCSVI treatment would be a godsend for me and for all the other MS sufferers.
    Mark, I am behind you all the way, and it's so wonderful to have someone proactive and doing what he can to achieve this goal. Good luck to you!

  • salli
    July 01, 2010 - 19:44

    I hope you have done all the proper research before you sign yourself up for this life threatening procedure!! Only 55% of MS patients have this condition of the veins and one man has already died during the procedure. I have MS and I would rather have the MS and still be alive that risk my life on a procedure not fully researched and tested.

    I sincerely hope this works for you and wish you all the best!!!

  • deb
    July 01, 2010 - 19:44

    Attn: Comments webmaster - plse post this revised comment. thnx
    Dear Mark,,, what a magnificent and brave thing to do. The controversy and disparity about CCSVI has been so overwhelming since Nov 09. That youre taking this to the HRC just makes sense. Never thought of it. Bravo. All the best to you and yr lawyers who know this is the Right thing to do. Plse keep us posted on FB's CCSVI Toronto page. Bless you! :]