Researchers at Memorial University (MUN) are asking residents of this province 18-years and older to complete an anonymous online survey about your opinions towards the storage and use of your genomic information.
No special background or knowledge is needed for this initiative by NL Support.
Researchers need participants to complete this online survey (approximately 20 minutes) on the electronic storage and uses of your genomic data.
To take the survey, click here or to learn more check out the Facebook group.
Email Dr. Holly Etchegary for more information at holly.etchegary@med.mun.ca … or, if you want to talk to someone who is not involved with the study and can advise you on your rights as a participant, please contact the Ethics Office at 709-777-6974 or info@hrea.ca.
NL Support is research support centre housed at Memorial's Faculty of Medicine. Its mandate is to nurture a culture of patient-oriented research in NL.